MinsaitTechnological subsidiary of the Indra Group, is participating in the technological development of the unique networka health project that tries Improve the care of pediatric patients with rare diseases or minority through digitalization. The project behind its development is financed with the Next Generation funds within the framework of the health belonging.
This network covers about thirty hospitals throughout Spain, and has a central interoperability node in the Ministry of Health. Its purpose is to reduce diagnostic times and guarantee the health equity of minors with this type of pathologies.
To do this, it will connect your information systems and facilitate communication between centers with agility, safety and accessibility, both for health professionals and for patients, families and caregivers. The unique network, promoted by the Ministry of Health, is one of the pillars of the digital health strategy, and has the functional direction of the Sant Joan de Déu (Barcelona) and the Community of Madrid. Catalonia is in charge of the development and technological integration of the project.
It is precisely Catalonia, through its public body of the Generalitat ICT SALUT Social, which has awarded to Minsait the development of the digital platform that will allow health professionals to share information, with a global and integrated vision, of pediatric patients of four types of diseases: mitochondrial, neuromuscular disorders, epileptic encephalopathies and syndromic disorders of neurological development.
The technological network that will be launched will establish, in order to ensure care continuity, an ecosystem works with the capacity to connect in real time the centers and care circuits, regardless of where each patient resides. This communication channel between disciplines, care levels and geographical areas will allow professionals to be oriented on practices that are being carried out in other hospitals for patients with similar pathologies.
At the same time, the network will positively impact the quality of life of minors, reducing the number of displacements necessary so that doctors can monitor their illness.
With this measure, therefore, one of the main difficulties will be reduced to provide adequate care to minors with rare diseases: to have equal access to specialized medical care centers that need depending on the patient’s home and access to tools to offer them close monitoring. It will also reduce the complexity of in many cases that they can obtain a diagnosis.
He Global Health Director of Minsait, Antonio Martoshe explained that thanks to the interoperability of the data of 30 hospitals throughout Spain, the network «It will correct a large part of the difficulties described to bring the best medical professional, the most precise diagnosis and the most appropriate treatment of patients with minority diseases regardless of where they proceed or where they are«.
Besides, The network already plans the development of a new phase, which they have called unique+and that according to Martos it will serve «to expand it to other pathologies and age groups; to integrate primary care; to incorporate artificial intelligence tools and advanced analytics; and to add images as a resource to support professionals. In summary, it is a great leap in the integral approach of this type of disease, shortening the average diagnostic time, allowing more casuistry for their research and improving the lives of patients and families affected«.
